Now for the darkness:( While in Ukraine, some of you will remember that our sweet Chloe Bea was having some trouble keeping her blood counts where they belong. In the weeks since we've home she has been closely monitored by an amazing team of Oncology Doctors. Poor baby girl had a bone marrow biopsy a few weeks ago and the results were not what we had prayed for. She has been diagnosed with MDS which is a form of blood cancer that is evolving into AML (Leukemia). Children with Down syndrome are predisposed to Leukemia and thankfully, Chloe's incredible Dr has always payed close attention to detail when it comes to our princess. We can honestly say that she is responsible for saving Chloe's life! Catching this disease in it's early stages is key and it is why Chloe will have better than a fighting chance... She's a rockstar and will blow us all away with her strength through the next year! Let's hope that Mom and Dad can be half as brave:)
Several blog posts ago, early on in our journey to Olivia, I talked about our Village. I can tell you, our Village has heard our devastating news and has gone into full swing! Prayer chains are connecting around the country, meal plans are being set up, family is making travel plans and even Leukemia walks are in the works! Lee and I are in awe and once again realizing how amazingly blessed we are.
Chloe is scheduled for another biopsy on July 5th and will start Chemotherapy soon after. We will be spending much of the next 6 months in the hospital. She will get to come home after each treatment only if her blood counts are perfect. There is concern with infection during the days after Chemo because her little body will have no immunity and with all of children at home there is a huge risk.
We are asking you all to storm the heavens with prayers for our beautiful girl.. We are going to put this all behind us for the next few weeks and enjoy our summer with our family. We have a lake vacation planned and Chloe's Doctors encouraged us to not cancel.. So we will happily go and you bet we will cherish every moment and not take one ounce of this precious life for granted...
Thank you for you continued prayers, support and love. Now enjoy some pictures of our Angel Girl:
Love to you all.....
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